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Author Topic: IM IN HOSPITAL  (Read 6154 times)

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Offline tommy246

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IM IN HOSPITAL
« on: August 25, 2009, 06:24:54 am »
 I have been here for 18 days ,told me i can go tommorow. I have had pnuemonia ,iwas feeling ill at home in bed for 4 days and eventually felt that rough i went to the emergency ward and they took me straight in. First they told me my cd4 count had crashed from 545 and % 17 in june to 190 cd4and to 9% and they started treating me for both pcp and normal bacterial pneumonia. After 2 days of treatment they took some samples from my lungs to confirm there main thoughts that it was pcp ,the lab results took nearly a week to come back and came back negative so now i am being treated for normal bacterial pnuemonia only.
Also my cd4 count bounced back after a week in hospital to over 400 and my %to 20,even though my viral load went up from 80,000 in june to 200,000(due to illness i guess ).
Originally they were going to start me on meds but due to the final outcome my hiv specialist says for her it wasnt pcp (could it be killed off with two days treatment to not show under a microscope ? ) but normal bacterial pnemonia and that the meds can wait for now to see my next blood draw in six weeks,as for her my immune system is in decent condition proved by the way it bounced back,i suppose it crashed whilst i was home fighting the illness with no antibiotics for a week. I did have bronchitus(had a good few times during my life ) in june and work in an open plan kitchen restaurant with aircon on my back and a hot griddle to my front so thats ideal surroundings to get a pnuemonia. an

I now feel fantastic healthier than i have in a long time ,its been an experience my first illness since being diagnosed with hiv in dec 08. But  after this i have zero fear of starting meds as  at one stage it looked like i would be starting in hospital i just accepted it and moved on.
Anyone thats it  my lungs sound 100 % clear and getting my final xray today to confirm that and i can go home ,just need to come back for a cat scan next week,just thought i would share my story.

jan 06 neg
dec 08 pos cd4 505 ,16%, 1,500vl
april 09 cd4 635 ,16%,60,000
july 09 ,cd4 545,17%,80,000
aug 09,hosptal 18days pneumonia cd190,225,000,15%
1 week later cd4 415 20%
nov 09 cd4 591 ,vl 59,000,14%,started atripla
dec 09  cd4 787, vl 266, 16%
march 2010  cd4 720 vl non detectable -20  20%
june 2010  cd4  680, 21%, ND

Offline anniebc

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Re: IM IN HOSPITAL
« Reply #1 on: August 25, 2009, 06:41:45 am »
Hi Tommy

Sorry to hear you have been through a bad time, but it's good to hear things are back to normal and you can go home tomorrow..just take care of yourself from now on and stay healthy.

Hugs
Jan
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline tommy246

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Re: IM IN HOSPITAL
« Reply #2 on: August 25, 2009, 06:54:56 am »
I forgot to add ive had time to have a couple of good chats with my hiv specialist since ive been here in hospital and she has told me that the success they are having with atripla is fantastic,over 99 % of adherent patients are non detectable and that it has very few side effects and of course is easy to take as its once aday one pill.
jan 06 neg
dec 08 pos cd4 505 ,16%, 1,500vl
april 09 cd4 635 ,16%,60,000
july 09 ,cd4 545,17%,80,000
aug 09,hosptal 18days pneumonia cd190,225,000,15%
1 week later cd4 415 20%
nov 09 cd4 591 ,vl 59,000,14%,started atripla
dec 09  cd4 787, vl 266, 16%
march 2010  cd4 720 vl non detectable -20  20%
june 2010  cd4  680, 21%, ND

Offline BT65

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Re: IM IN HOSPITAL
« Reply #3 on: August 25, 2009, 07:46:18 am »
Tommy, I'm glad you're doing better.  Being in the hospital sucks, I know.  I hope everything goes well for you.
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

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Offline David_CA

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  • Joined: March 2006
Re: IM IN HOSPITAL
« Reply #4 on: August 25, 2009, 08:13:48 am »
Hi Tommy,

Wow, 18 days sucks (I was in for 8 days for PCP back in '06).  It's odd that it took so long to get results back, though; mine came back the next day I think.  I also had zero fear of meds I think, in part, due to having been sick.  I did start meds while in the hospital.  It took me a while to get undetectable with Atripla, but I finally got there.  I've not missed a dose and have minimal side effects.  Good luck with it when you start.  Take care.

David
Black Friday 03-03-2006
03-23-06 CD4 359 @27.4% VL 75,938
06-01-06 CD4 462 @24.3% VL > 100,000
08-15-06 CD4 388 @22.8% VL >  "
10-21-06 CD4 285 @21.9% VL >  "
  Atripla started 12-01-2006
01-08-07 CD4 429 @26.8% VL 1872!
05-08-07 CD4 478 @28.1% VL 740
08-03-07 CD4 509 @31.8% VL 370
11-06-07 CD4 570 @30.0% VL 140
02-21-08 CD4 648 @32.4% VL 600
05-19-08 CD4 695 @33.1% VL < 48 undetectable!
08-21-08 CD4 725 @34.5%
11-11-08 CD4 672 @39.5%
02-11-09 CD4 773 @36.8%
05-11-09 CD4 615 @36.2%
08-19-09 CD4 770 @38.5%
11-19-09 CD4 944 @33.7%
02-17-10 CD4 678 @39.9%  
06-03-10 CD4 768 @34.9%
09-21-10 CD4 685 @40.3%
01-10-11 CD4 908 @36.3%
05-23-11 CD4 846 @36.8% VL 80
02-13-12 CD4 911 @41.4% VL<20
You must be the change you want to see in the world.  Mahatma Gandhi

Offline GSOgymrat

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  • HIV+ since 1993. Relentlessly gay.
Re: IM IN HOSPITAL
« Reply #5 on: August 25, 2009, 08:56:26 am »
Wow, 18 days is a long time. Glad that you have bounced back and are doing better.

Offline Miss Philicia

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Re: IM IN HOSPITAL
« Reply #6 on: August 25, 2009, 09:31:33 am »
Hi Tommy, I'm glad that it was "normal" pneumonia and not PCP and that you are on the mend.  That sounds like quite an experience and will be thinking of you.
"I’ve slept with enough men to know that I’m not gay"

Offline leatherman

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Re: IM IN HOSPITAL
« Reply #7 on: August 25, 2009, 09:43:43 am »
WooHoo!
Sorry to hear about how sick you were and really glad to hear you're getting OUT! I ended up in a hospital on my 34th bday (and for 4 more days) with PCP. Two years leater I was back in on my 36th bday (and 3 more days) with just "regular" pnuemonia. Both times were scary and life-changing (thank goodness! because both times were nearly "life-ending"!). Hospitals may be great places to get treated for that kind of stuff; but it sure sucks being there! Take care and take it easy after you're released. It'll probably take a while to "recover" from being in the hospital that long.

I'll keep you in my thoughts for a fast recovery!
leatherman (aka Michael)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline Andy Velez

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Re: IM IN HOSPITAL
« Reply #8 on: August 25, 2009, 09:46:05 am »
Hi Tommy,

Sorry to hear you've had such a rough siege, but good to know that you've come through and are feeling much better.

Be good to sleep in your own bed again and get back to your life. Sounds like you also learned a lot from this experience.

Best to you and keep us posted.

Cheers.
Andy Velez

Offline J.R.E.

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  • Positive since 1985, joined forums 12/03
Re: IM IN HOSPITAL
« Reply #9 on: August 25, 2009, 09:48:13 am »
Hello Tommy,

Glad to hear that things are getting better for you.  I had Bacterial pneumonia in 2003. I was hospitalized for 1 day.(September 26th,03)  I should have probably stayed a few more.  That first weekend back home, I couldn't do much at all. It took every effort, just to move. I still wasn't on HIV meds at that point. Didn't start the HIV medication until October 24th,03.  Was on all that other good stuff, Bactrim, Prednisone, then dapsone, Zithromax. ugh,...

Don't fear the meds. Things will improve for you.  I've never had pneumonia again since that time.


Hang in there----Ray
Current Meds ; Viramune / Epzicom Eliquis, Diltiazem. Pravastatin 80mg, Ezetimibe. UPDATED 2/18/24
 Tested positive in 1985,.. In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started on  HAART on October 24th, 2003.

 As of Oct 2nd, 2023, Viral load Undetectable.
CD 4 @676 /  CD4 % @ 18 %
Lymphocytes,absolute-3815 (within range)


72 YEARS YOUNG

Offline Texan38

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Re: IM IN HOSPITAL
« Reply #10 on: August 25, 2009, 10:02:59 am »
So glad to hear you've gotten better.

Take care of yourself.... :-*
In Hollywood an equitable divorce settlement means each party getting fifty per cent of publicity.
~ Lauren Bacall

Offline YaKaMein

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Re: IM IN HOSPITAL
« Reply #11 on: August 25, 2009, 10:47:31 am »
Keep feeling better and bouncing back. -YaKa
09/11 Endocrine Consult
08/11 CD4 328 14.9% VL 0
 Disc'd Bactrim DEXA -3.1 Tscore
03/11 CD4 338 14.7% VL 0
11/10 CD4 300 14.3% VL 0 <20copies
07/10 CD4 336 14.0% VL 0 DEXA -2.7 Tscore
03/10 CD4 308 13.4% VL 0 Vit D normal
01/10 Began FOTO
11/09 CD4 274 13.7% VL 0 Chol 173 Trig 131
07/09 CD4 324 13.5% VL 0 DEXA -3.1 Tscore lumbar
03/09 CD4 207 10.9% VL 0
11/08 CD4 227 10.3% VL 0 Chol 176 Trig 156
04/08 CD4 228 9.5% VL 0
01/08 CD4 194 9.0% VL 0
09/07 CD4 176 8.3% VL 0
03/07 CD4 130 9.5% VL 0 Chol 261  Trig 227
12/06 CD4 109 6.4% VL 0
09/06 CD4  88 5.5% VL und desens'd rtd to Bactrim
08/06  Began Atripla
07/06 CD4  59 5.0% VL 145 Chol 117 Trig 104
06/06  Bactrim rash, X2 Dapsone
 EFV & Truvada Chol 128 Trig 131
05/06 CD4  6 (2.0%) VL 78667 only V179D mutation Dx PC MAC

Offline AboutToStart

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Re: IM IN HOSPITAL
« Reply #12 on: August 25, 2009, 10:11:50 pm »
I was just wondering, all you guyz sharing info about having pneuminias - have you been ever vaccinated for that (and still got sick) or were you not??

Offline David_CA

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Re: IM IN HOSPITAL
« Reply #13 on: August 25, 2009, 10:35:58 pm »
I was just wondering, all you guyz sharing info about having pneuminias - have you been ever vaccinated for that (and still got sick) or were you not??


The vaccines don't help with PCP, unfortunately.
Black Friday 03-03-2006
03-23-06 CD4 359 @27.4% VL 75,938
06-01-06 CD4 462 @24.3% VL > 100,000
08-15-06 CD4 388 @22.8% VL >  "
10-21-06 CD4 285 @21.9% VL >  "
  Atripla started 12-01-2006
01-08-07 CD4 429 @26.8% VL 1872!
05-08-07 CD4 478 @28.1% VL 740
08-03-07 CD4 509 @31.8% VL 370
11-06-07 CD4 570 @30.0% VL 140
02-21-08 CD4 648 @32.4% VL 600
05-19-08 CD4 695 @33.1% VL < 48 undetectable!
08-21-08 CD4 725 @34.5%
11-11-08 CD4 672 @39.5%
02-11-09 CD4 773 @36.8%
05-11-09 CD4 615 @36.2%
08-19-09 CD4 770 @38.5%
11-19-09 CD4 944 @33.7%
02-17-10 CD4 678 @39.9%  
06-03-10 CD4 768 @34.9%
09-21-10 CD4 685 @40.3%
01-10-11 CD4 908 @36.3%
05-23-11 CD4 846 @36.8% VL 80
02-13-12 CD4 911 @41.4% VL<20
You must be the change you want to see in the world.  Mahatma Gandhi

Offline GNYC09

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Re: IM IN HOSPITAL
« Reply #14 on: August 26, 2009, 12:05:03 am »
Feel better!  Are you doing your lung exercises with that lung-thingy?  God, I hated that contraption.

[attachment deleted by admin]

Offline tommy246

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Re: IM IN HOSPITAL
« Reply #15 on: August 26, 2009, 05:42:15 am »
You Cant you get vacinated for bacterial  pnuemonia can you ?
jan 06 neg
dec 08 pos cd4 505 ,16%, 1,500vl
april 09 cd4 635 ,16%,60,000
july 09 ,cd4 545,17%,80,000
aug 09,hosptal 18days pneumonia cd190,225,000,15%
1 week later cd4 415 20%
nov 09 cd4 591 ,vl 59,000,14%,started atripla
dec 09  cd4 787, vl 266, 16%
march 2010  cd4 720 vl non detectable -20  20%
june 2010  cd4  680, 21%, ND

Offline J.R.E.

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  • Positive since 1985, joined forums 12/03
Re: IM IN HOSPITAL
« Reply #16 on: August 26, 2009, 07:34:22 am »
Hi,

I had the Pneumonia shot. But I think that was after I aleady got it. Abooster is given 5 years after the first one.

These are the recommended immunizations for those that are HIV positive :

http://www.aidsinfo.nih.gov/contentfiles/Recommended_Immunizations_FS_en.pdf

Ray
« Last Edit: August 26, 2009, 07:37:12 am by J.R.E. »
Current Meds ; Viramune / Epzicom Eliquis, Diltiazem. Pravastatin 80mg, Ezetimibe. UPDATED 2/18/24
 Tested positive in 1985,.. In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started on  HAART on October 24th, 2003.

 As of Oct 2nd, 2023, Viral load Undetectable.
CD 4 @676 /  CD4 % @ 18 %
Lymphocytes,absolute-3815 (within range)


72 YEARS YOUNG

Offline tommy246

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Re: IM IN HOSPITAL
« Reply #17 on: August 26, 2009, 11:42:58 am »
the pnuemonia jab you had is that to stop you getting the bog standard bacterial pnuemonia or another type.
jan 06 neg
dec 08 pos cd4 505 ,16%, 1,500vl
april 09 cd4 635 ,16%,60,000
july 09 ,cd4 545,17%,80,000
aug 09,hosptal 18days pneumonia cd190,225,000,15%
1 week later cd4 415 20%
nov 09 cd4 591 ,vl 59,000,14%,started atripla
dec 09  cd4 787, vl 266, 16%
march 2010  cd4 720 vl non detectable -20  20%
june 2010  cd4  680, 21%, ND

Offline Assurbanipal

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  • Taking a forums break, still see PM's
Re: IM IN HOSPITAL
« Reply #18 on: August 26, 2009, 01:51:55 pm »
Hi Tommy

Hope you have made it out of the hospital by now -- that's a long time to be in.

The pnuemonia shot is called Pneumovax in the US -- it works against the bacterial pneumonia (Streptoccus pneumoniae).  Here's the package information from the manufacturer  http://www.merck.com/product/usa/pi_circulars/p/pneumovax_23/pneumovax_pi.pdf

Best wishes
A
5/06 VL 1M+, CD4 22, 5% , pneumonia, thrush -- O2 support 2 months, 6/06 +Kaletra/Truvada
9/06 VL 3959 CD4 297 13.5% 12/06 VL <400 CD4 350 15.2% +Pravachol
2007 VL<400, 70, 50 CD4 408-729 16.0% -19.7%
2008 VL UD CD4 468 - 538 16.7% - 24.6% Osteoporosis 11/08 doubled Pravachol, +Calcium/D
02/09 VL 100 CD4 616 23.7% 03/09 VL 130 5/09 VL 100 CD4 540 28.4% +Actonel (osteoporosis) 7/09 VL 130
8/09  new regimen Isentress/Epzicom 9/09 VL UD CD4 621 32.7% 11/09 VL UD CD4 607 26.4% swap Isentress for Prezista/Norvir 12/09 (liver and muscle issues) VL 50
2010 VL UD CD4 573-680 26.1% - 30.9% 12/10 VL 20
2011 VL UD-20 CD4 568-673 24.7%-30.6%
2012 VL UD swap Prezista/Norvir for Reyataz drop statin CD4 768-828 26.7%-30.7%
2014 VL UD - 48
2015 VL 130 Moved to Triumeq

Offline tommy246

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Re: IM IN HOSPITAL
« Reply #19 on: August 26, 2009, 04:26:36 pm »
Thanks for the kind messages back home now just a bit tired a weeks more anti biotics to go. . I still cant believe how my numbers bounced around end of june cd4  545  17% healthy,to after  5 days ill in bed and getting taken into hospital cd4 190 ,16 %  8th august, to 1 week later still in hospital to cd4 412 and 21 % 15th august. My next blood draw should be intresting on the 8th of october.Still no meds.
jan 06 neg
dec 08 pos cd4 505 ,16%, 1,500vl
april 09 cd4 635 ,16%,60,000
july 09 ,cd4 545,17%,80,000
aug 09,hosptal 18days pneumonia cd190,225,000,15%
1 week later cd4 415 20%
nov 09 cd4 591 ,vl 59,000,14%,started atripla
dec 09  cd4 787, vl 266, 16%
march 2010  cd4 720 vl non detectable -20  20%
june 2010  cd4  680, 21%, ND

Offline gregftl

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Re: IM IN HOSPITAL
« Reply #20 on: August 27, 2009, 02:14:00 am »
well maybe if u had been taking hiv meds u wuldnt have gotten sick in the 1st place. it's funny how people that become hiv poz ....some of them still think they are invincible. get on some meds already!

Offline tommy246

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Re: IM IN HOSPITAL
« Reply #21 on: August 27, 2009, 02:35:18 am »
Its not funny and i dont think im invincible i am a patient under the control of an experienced team of hiv specialists in a large city hospital they will tell me when to start meds its not my decision. Anybody can get pnuemonia , i have had alot of bronchitus in my life also live and work in spain in an open kitchen hot griddle to the front of me aircon to the back aircon in the car and at home ,in and out of hot and cold all the time ,i wont be going back to the kitchen thats for sure all the fumes from the griddle wont be doing me any favours. So in future think before you write such comments.
jan 06 neg
dec 08 pos cd4 505 ,16%, 1,500vl
april 09 cd4 635 ,16%,60,000
july 09 ,cd4 545,17%,80,000
aug 09,hosptal 18days pneumonia cd190,225,000,15%
1 week later cd4 415 20%
nov 09 cd4 591 ,vl 59,000,14%,started atripla
dec 09  cd4 787, vl 266, 16%
march 2010  cd4 720 vl non detectable -20  20%
june 2010  cd4  680, 21%, ND

Offline skeebo1969

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Re: IM IN HOSPITAL
« Reply #22 on: August 27, 2009, 02:58:17 am »
well maybe if u had been taking hiv meds u wuldnt have gotten sick in the 1st place. it's funny how people that become hiv poz ....some of them still think they are invincible. get on some meds already!


Dude like really.....  If you read his initial post in this thread you can see that his Cd4's were 500+.  In the states and especially in South Florida from my experience, you are not advised to go on meds till your Cd4's drop to around 300 and show a steady trend of doing so.  Tommy did not find out his numbers had crashed until he had gotten his pneumonia diagnosis.

  If you will take the time to understand the realities of what happend to him I think you would find it difficult to make the above statement.  Patronizing comments like yours can really bring a person down when all they see are the four walls of a hospital room.
I despise the song Love is in the Air, you should too.

 


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