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Author Topic: need help, medicaid terminated me  (Read 7680 times)

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Offline 2tcells

  • Member
  • Posts: 259
need help, medicaid terminated me
« on: February 29, 2016, 04:51:14 pm »
just found out today that Medicaid terminated me, I was on ssdi ans ssi and now im only on ssdi and get 1100 a month. since im not on ssi I don't get Medicaid anymore. Medicaid will pay my medicare premium of 105 a month but that's all. I had humana drug coverage but I don't know who payed for that I think it was Medicaid. Medicaid says they will pay the premium for part a and b not d so I don't even know if I have that anymore... just found this out and Medicaid had no awnsers for me for how im going to pay for meds. I filed for a hearing. and set a appointment with ryan white next week

what should I do now?
7-4-13 diagnosed   cd4- 2      vl-220,600
8-3-13                     cd4- 4      vl- 448
9-3-13                     cd4- 40    vl- ud
11-3-13                   cd4- 54    vl-ud
1-9-14                     cd4- 62    vl- 43
4-3-14                     cd4- 110  vl-ud
8-5-14                     cd4- 95    vl-ud
9-23-14                   cd4- 97    vl-ud
1-22-15                   cd4- 156  vl-ud
4-14-15                   cd4- 122  vl-ud
6-12-15                   cd4- 148  vl-?
8-15-15 start stribild
9-3-15                     cd4- 152 vl-ud
11-25-15                  cd4- 211 vl-20
2-17-16                   cd-4 194 vl-ud
4-1-16 start genvoya
5-10-16                   cd-4 220 vl-ud
9-19-16                   cd-4 182 vl-ud
12-2016                  cd-4  267!vl-ud
2018 cd4 187 switching meds

Offline 2tcells

  • Member
  • Posts: 259
Re: need help, medicaid terminated me
« Reply #1 on: February 29, 2016, 04:54:47 pm »
when your on ssdi and ssi who pays for your humana plan? is it Medicaid or medicare? if medicare pays it I don't think I have a problem.... very confused
7-4-13 diagnosed   cd4- 2      vl-220,600
8-3-13                     cd4- 4      vl- 448
9-3-13                     cd4- 40    vl- ud
11-3-13                   cd4- 54    vl-ud
1-9-14                     cd4- 62    vl- 43
4-3-14                     cd4- 110  vl-ud
8-5-14                     cd4- 95    vl-ud
9-23-14                   cd4- 97    vl-ud
1-22-15                   cd4- 156  vl-ud
4-14-15                   cd4- 122  vl-ud
6-12-15                   cd4- 148  vl-?
8-15-15 start stribild
9-3-15                     cd4- 152 vl-ud
11-25-15                  cd4- 211 vl-20
2-17-16                   cd-4 194 vl-ud
4-1-16 start genvoya
5-10-16                   cd-4 220 vl-ud
9-19-16                   cd-4 182 vl-ud
12-2016                  cd-4  267!vl-ud
2018 cd4 187 switching meds

Offline Jeff G

  • Administrator
  • Member
  • Posts: 17,064
  • How am I doing Beren ?
Re: need help, medicaid terminated me
« Reply #2 on: February 29, 2016, 07:03:13 pm »
If you make under 50k in most states you can get APAP … google adap requirements for your state and you will know what to expect.
HIV 101 - Basics
HIV 101
You can read more about Transmission and Risks here:
HIV Transmission and Risks
You can read more about Testing here:
HIV Testing
You can read more about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read more about HIV prevention here:
HIV prevention
You can read more about PEP and PrEP here
PEP and PrEP

Offline BT65

  • Global Moderator
  • Member
  • Posts: 10,786
Re: need help, medicaid terminated me
« Reply #3 on: March 01, 2016, 07:41:19 am »
Hi 2cells,
I would definitely contact your nearest ASO and get hooked up with a case manager. This person should be able to hook you up with any program you are eligible for that will help with your med cost and your premium cost. 

Betty
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Offline 2tcells

  • Member
  • Posts: 259
Re: need help, medicaid terminated me
« Reply #4 on: March 04, 2016, 01:51:48 am »
got with a case worker and social worker today at my dr office and I got appointments all week but they assure me I will get my meds ;D my dr even told me if I ever get a bill from them to bring it in and they will take care of it so I don't have to pay it. wow that's pretty cool. they offered me all sorts of other stuff for free like food, bus passes, pay my power bills, rental assistants but I told them I just want my meds and that's it. thanks for the advice I will be signing up for ryan white and adap this week and will post back when I find out if they can really get me my meds
7-4-13 diagnosed   cd4- 2      vl-220,600
8-3-13                     cd4- 4      vl- 448
9-3-13                     cd4- 40    vl- ud
11-3-13                   cd4- 54    vl-ud
1-9-14                     cd4- 62    vl- 43
4-3-14                     cd4- 110  vl-ud
8-5-14                     cd4- 95    vl-ud
9-23-14                   cd4- 97    vl-ud
1-22-15                   cd4- 156  vl-ud
4-14-15                   cd4- 122  vl-ud
6-12-15                   cd4- 148  vl-?
8-15-15 start stribild
9-3-15                     cd4- 152 vl-ud
11-25-15                  cd4- 211 vl-20
2-17-16                   cd-4 194 vl-ud
4-1-16 start genvoya
5-10-16                   cd-4 220 vl-ud
9-19-16                   cd-4 182 vl-ud
12-2016                  cd-4  267!vl-ud
2018 cd4 187 switching meds

Offline 2tcells

  • Member
  • Posts: 259
Re: need help, medicaid terminated me
« Reply #5 on: March 07, 2016, 08:22:50 pm »
got my ryan white part b (adap) today we will see how well it works next month when I refill.

they say it covers all my co pays and deductibles, dose that mean my meds are free? what about the yearly out of pocket max?
7-4-13 diagnosed   cd4- 2      vl-220,600
8-3-13                     cd4- 4      vl- 448
9-3-13                     cd4- 40    vl- ud
11-3-13                   cd4- 54    vl-ud
1-9-14                     cd4- 62    vl- 43
4-3-14                     cd4- 110  vl-ud
8-5-14                     cd4- 95    vl-ud
9-23-14                   cd4- 97    vl-ud
1-22-15                   cd4- 156  vl-ud
4-14-15                   cd4- 122  vl-ud
6-12-15                   cd4- 148  vl-?
8-15-15 start stribild
9-3-15                     cd4- 152 vl-ud
11-25-15                  cd4- 211 vl-20
2-17-16                   cd-4 194 vl-ud
4-1-16 start genvoya
5-10-16                   cd-4 220 vl-ud
9-19-16                   cd-4 182 vl-ud
12-2016                  cd-4  267!vl-ud
2018 cd4 187 switching meds

Offline initforlife

  • Member
  • Posts: 832
Re: need help, medicaid terminated me
« Reply #6 on: March 08, 2016, 09:38:15 am »
I'm not sure what state you are in .but yes Ryan White should cover any med cost and you shouldn't have to pay anything for them so relax and let the program do the rest..
sometimes it is best to say nothing at all. then to offend

Offline Jeff G

  • Administrator
  • Member
  • Posts: 17,064
  • How am I doing Beren ?
Re: need help, medicaid terminated me
« Reply #7 on: March 08, 2016, 11:02:28 am »
I qualify for ADAP and it pays for my prescriptions while I am in the donut hole on medicare part D until I reach my deductible amount and then part D kicks in and pays for them after that … it takes me only about 3 months to meet the deductible. It works the same with mosts insurance … so you will get your drugs and all is good.
HIV 101 - Basics
HIV 101
You can read more about Transmission and Risks here:
HIV Transmission and Risks
You can read more about Testing here:
HIV Testing
You can read more about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read more about HIV prevention here:
HIV prevention
You can read more about PEP and PrEP here
PEP and PrEP

Offline 2tcells

  • Member
  • Posts: 259
Re: need help, medicaid terminated me
« Reply #8 on: March 10, 2016, 10:51:17 pm »
good, thanks for the info jeff. I can keep on not caring about having aids. when It starts costing me money I will start bitching about how it sucks to be hiv+
7-4-13 diagnosed   cd4- 2      vl-220,600
8-3-13                     cd4- 4      vl- 448
9-3-13                     cd4- 40    vl- ud
11-3-13                   cd4- 54    vl-ud
1-9-14                     cd4- 62    vl- 43
4-3-14                     cd4- 110  vl-ud
8-5-14                     cd4- 95    vl-ud
9-23-14                   cd4- 97    vl-ud
1-22-15                   cd4- 156  vl-ud
4-14-15                   cd4- 122  vl-ud
6-12-15                   cd4- 148  vl-?
8-15-15 start stribild
9-3-15                     cd4- 152 vl-ud
11-25-15                  cd4- 211 vl-20
2-17-16                   cd-4 194 vl-ud
4-1-16 start genvoya
5-10-16                   cd-4 220 vl-ud
9-19-16                   cd-4 182 vl-ud
12-2016                  cd-4  267!vl-ud
2018 cd4 187 switching meds

Offline 2tcells

  • Member
  • Posts: 259
Re: need help, medicaid terminated me
« Reply #9 on: March 12, 2016, 07:36:37 pm »
so yesterday the 11th I got a letter from Medicaid that was dated the 1st saying I would be terminated on the 10th if I didn't provide documents for my kids insurance. the documents they want I have a print out from them that I gave them the docs the day before this letter is dated on feb 29 that I gave them. they mailed this letter on the 9th and gave me til the 10th to respond, I didn't get the letter til the 11th because they mailed it on the 9th. so no notice and no chance to respond in time now my kids have no insurance and I took my youngest to the dr on the 11th for a emergency when I thought I had insurance but I didn't now I have to pay for it..... FML... bullshit! I already gave them what they wanted the day before they wanted it but dosnt matter to them.
7-4-13 diagnosed   cd4- 2      vl-220,600
8-3-13                     cd4- 4      vl- 448
9-3-13                     cd4- 40    vl- ud
11-3-13                   cd4- 54    vl-ud
1-9-14                     cd4- 62    vl- 43
4-3-14                     cd4- 110  vl-ud
8-5-14                     cd4- 95    vl-ud
9-23-14                   cd4- 97    vl-ud
1-22-15                   cd4- 156  vl-ud
4-14-15                   cd4- 122  vl-ud
6-12-15                   cd4- 148  vl-?
8-15-15 start stribild
9-3-15                     cd4- 152 vl-ud
11-25-15                  cd4- 211 vl-20
2-17-16                   cd-4 194 vl-ud
4-1-16 start genvoya
5-10-16                   cd-4 220 vl-ud
9-19-16                   cd-4 182 vl-ud
12-2016                  cd-4  267!vl-ud
2018 cd4 187 switching meds

Offline pooly

  • New Member
  • Posts: 1
Re: need help, medicaid terminated me
« Reply #10 on: March 20, 2016, 02:42:28 pm »
DCF could care less, trying the same bs with me!

Offline 2tcells

  • Member
  • Posts: 259
Re: need help, medicaid terminated me
« Reply #11 on: May 01, 2016, 12:53:08 am »
so I appealed the decision at that time they told me I would be terminated, they gave me 30 more days before my coverage would be terminated. I went all over town to everyone and got it all figured out with the aso and ryan white where all my meds were covered....then the day my insurance was suppose to be terminated they sent me a letter that actually said I can have my insurance back because it is to much trouble for them to goto the appeal..... by that time I was actually happy to not be under medicaids rules for how I can live. next year im not going to apply and will be free from there bullshit. Medicaid= cant own shit, they get everything you own when you die, keep tabs on you, ect.
7-4-13 diagnosed   cd4- 2      vl-220,600
8-3-13                     cd4- 4      vl- 448
9-3-13                     cd4- 40    vl- ud
11-3-13                   cd4- 54    vl-ud
1-9-14                     cd4- 62    vl- 43
4-3-14                     cd4- 110  vl-ud
8-5-14                     cd4- 95    vl-ud
9-23-14                   cd4- 97    vl-ud
1-22-15                   cd4- 156  vl-ud
4-14-15                   cd4- 122  vl-ud
6-12-15                   cd4- 148  vl-?
8-15-15 start stribild
9-3-15                     cd4- 152 vl-ud
11-25-15                  cd4- 211 vl-20
2-17-16                   cd-4 194 vl-ud
4-1-16 start genvoya
5-10-16                   cd-4 220 vl-ud
9-19-16                   cd-4 182 vl-ud
12-2016                  cd-4  267!vl-ud
2018 cd4 187 switching meds

Offline 2tcells

  • Member
  • Posts: 259
Re: need help, medicaid terminated me
« Reply #12 on: May 01, 2016, 12:57:57 am »
that last post was about my insurance thanks to ryan white I have options.... as for my kids I am screwed and paying out of pocket
7-4-13 diagnosed   cd4- 2      vl-220,600
8-3-13                     cd4- 4      vl- 448
9-3-13                     cd4- 40    vl- ud
11-3-13                   cd4- 54    vl-ud
1-9-14                     cd4- 62    vl- 43
4-3-14                     cd4- 110  vl-ud
8-5-14                     cd4- 95    vl-ud
9-23-14                   cd4- 97    vl-ud
1-22-15                   cd4- 156  vl-ud
4-14-15                   cd4- 122  vl-ud
6-12-15                   cd4- 148  vl-?
8-15-15 start stribild
9-3-15                     cd4- 152 vl-ud
11-25-15                  cd4- 211 vl-20
2-17-16                   cd-4 194 vl-ud
4-1-16 start genvoya
5-10-16                   cd-4 220 vl-ud
9-19-16                   cd-4 182 vl-ud
12-2016                  cd-4  267!vl-ud
2018 cd4 187 switching meds

Offline hiv_rizzy

  • Member
  • Posts: 139
  • Male. 28. Positive
Re: need help, medicaid terminated me
« Reply #13 on: May 09, 2016, 10:47:45 pm »
that last post was about my insurance thanks to ryan white I have options.... as for my kids I am screwed and paying out of pocket

Hang in there. Reading all that you are going through. Keep optimistic and clear all these hurdles. A long life awaits!
Discovery! April 26, 2016
- Positive test confirmed by blood test
2016
-Viral load and CD4 unknown
-May 31st update - big delay at gov hosp lab
#July 9th late Results: CD4 16/ VL 13, 027
*Prescribed Atripla combo with Bactrim
#September CD4 97 / VL UD
2017
February CD4 137 / VL UD

Offline ksmg1213

  • New Member
  • Posts: 2
Re: need help, medicaid terminated me
« Reply #14 on: May 25, 2016, 03:57:48 am »
If u still have low income u can qualify for extra help from Medicare and the state that's not Medicaid it will pay for ur premium

 


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